Monday, October 31, 2011

Happy Halloween!

He wasn't quite sure what to think
of this.  It was "what is this you're
doing to me?"  And while the costume
was okay, he wasn't sure about
the hood at all.  Silly bug.
Last night was a better night.  He only had two desats and came back easily.  MUCH better than the previous 24 hours where we were constantly rescuing him over and over.  Today’s plan had us decreasing the tidal volume on the ventilator.  They’re wondering with his lungs hyperextended if they’re too tight to exchange the oxygen well.  It doesn’t seem to have made a big difference, but it might have made a small one.  Also, they’ve put him on two different antibiotics to try to kick this pseudomonas.  It’s a particularly sticky bacteria, so we’re using an inhaled drug to break up the DNA in the pseudomonas so it’s easier to suction out.  He gets it twice a day and the RT said it would take probably two days to really see a difference. 
We also tried lying him down on his tummy.  That was kind of tricky, and I should have taken a picture, but once we got him there, they were hoping he’d tolerate it for at least 30 minutes.  Not only did he tolerate it, he loved it.  He slept like that for about six hours!  Again, it didn’t seem to do much fto improve his oxygenation, but at least he got some really good sleep.  That has to count for something. 

 So there we are.  He’s looking better, happier, but still struggling.  At least it’s not quite as scary.  But I just don’t understand why he’s needing so much oxygen, and neither do the doctors.

 I love the way they cater to the whole child here (and the parent, too).  It’s Halloween.  The kid’s holiday.  Child Life stopped by to say that if we don’t  have a costume, they have them upstairs.  And they’ll be by later to take pictures.  I went up and got the cutest monkey costume.  I think it’s appropriate.  He was asleep when I got back, so we’ll put it on later.  I needed this.


  1. Grrrrr he is so so cute!!! I need to come see him.

  2. I love that monkey costume!!!!! PCMC is the BEST!