Winter is hard on kids like Aaron. So many in the hospital, so many who have passed away in December, often from a virus. Yeah, and the common cold is the most common culprit. Most years we spend part of the month in Primary’s. Last year we raced in, almost too late, and fought for ten days to keep him breathing. Five years ago, we spent the days before Christmas, Christmas day and the week after in the PICU, coming home on New Year’s Eve. That was the year our children voted unanimously to put off Christmas so Aaron could be part of things.
The reality is, someday Tiny Tim’s crutch will be alone by the fireplace, and no one wants to deal with that before it has to happen.
But it’s real. We are getting poorer results while giving more support than we ever have before.
I want to remember the look of joy on his face as he sees Daddy come into the room.
I don’t want to forget how excited he gets when we get him ready for church and put him in his wheelchair. He likes going out, but he really gets going on Sunday mornings when he’s all dressed up. Buckling the straps is a challenge as he wiggles and giggles through the process.