Supports for Families Facing a Trisomy Diagnosis

This is by no means an exhaustive list, but it's a start.  Know that YOU are the parents and YOU should be able to make decisions for your child.  I firmly feel that God sends each child to a family that is uniquely qualified to love and know their baby, to make decisions in the best interest of their child.


Trisomy 18 Medical Study published in Oraphant Rare Disease Journal Oct 23, 2012

Trisomy 18
Living with Trisomy 13 Group Page -
Trisomy Families
Hope for Trisomy -
Faces of Trisomy -
Trisomy Angel Parents -
Trisomy 18 Foundation Parents -!/groups/ExpectingTrisomy18/
SOFT (Support Organization for Trisomy) Website -
                NPO Page -
                SOFTGroup Page -
Partial Trisomy 3 -
Trisomy 4 (and 9p deletion) -
Trisomy 5p -
Trisomy 8 Mosaicism -
Trisomy 9 Mosaic -
Trisomy 14 Mosaic -
Mosaic Trisomy 22 -
Trisomy X -

Southeast Trisomy Families (SOFT) -
Trisomy Families of CA (SOFT) -
Houston Trisomy Circle of Friends -
Trisomy Families of the Great Lakes -

SOFT (Support Organization for Trisomy) Australia -

SOFT (Support Organization for Trisomy) Ireland -

United Kingdom
SOFT (Support Organization for Trisomy) UK -


  1. There are two more groups in the UK
    Edwards Syndrome Families UK
    Trisomy Families

  2. Both are facebook groups, but I think there are also related websites and blogs. x