This year I keep remembering last year. And trying not to.
This time last year Aaron was fighting for his life, literally. And it seems strange that it's already been a year, and at the same time, only a year ago.
It's taken a full year for him to recover, mostly, from that episode. He still hasn't regained some of the fine motor skills, but overall, he's doing soooo well (well, minus his ears).
Yesterday he saw Dr. ENT for those nasty ears. Mid-January that poor right ear ruptured again. And yet again, and then again... So the plan is to take him to the ER the first week of March to get it cleaned out really well, looked at really well, and then figure out where to go from there. Poor kiddo.
Anyway, so between grad school, trying to figure out nursing issues, med challenges, and then memories, well, I'm giving myself grace. This is not the year I have it within me to promote awareness for heart month.
Aaron has a night nurse now four nights a week. There have been a few growing pains, but this kid is complicated enough that I'd be worried if there weren't any. So I do sleep in "my" bed four nights a week and the office bed the other nights. We make it work.
We'll see what Trisomy month brings. Maybe I'll get some things done, maybe not. And guess what? If I don't, that will be okay too.
Self-care, being aware of limitations, and accepting them. Sometimes it's hard to give myself the grace I would easily extend to others. I don't have to do everything. I'm working on that.
