Sunday, March 24, 2013

Sweet Pictures

A sweet friend has been putting together some fun pictures about our kids with Trisomy for Trisomy Awareness Month.  I asked her to do "something" and she pulled these two pictures and did them.  Didn't she do a fabulous job?  I'm so grateful for my Trisomy family.  They mean the world to me. 

In Aaron news, he went to church today because Mary was speaking.  She leaves for the Missionary Training Center on April 3rd and then shortly thereafter goes to Canada Vancouver for the next 18 months. 

Because next week is Easter, he'll start going back to church regularly.  That's kind of been our signal date that winter (and hopefully most of the viruses) is on the wane.  He's been using his speaking valve for most of his vent trials, and hopefully tomorrow we'll start turning down the support on the ventilator a little bit.  We are actually a little bit excited about someday needing to take him out of church because he's being too noisy.  He, himself, not his machines.  It's not too often that parents are hoping for their child to make too much noise in church, but then, it's not too often that it's a real milestone for a child to be able to make that commotion.

“I didn't want normal until I didn't have it anymore” 
Lament: The Faerie Queen's Deception

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