In medical literature, babies with Trisomy 18 are "incompatible with life." Our precious son, Aaron, is defying the odds and not only living, but thriving and loving his life. This is an effort to share his joy in his journey. Like the little purple pansy, he is tiny, but strong and brightens his corner of the world. If you'd like to see more pictures and his story from April 2010 to March 2011, go to Http://www.carepages.com/carepages/GiftfromHeaven
Wednesday, April 18, 2012
Good News But a Rough Night
Aaron had a rough night last night. This baby Never cries but last night he sure did. And it was audible. And it went on for hours and he just couldn't be comforted. He was just in so much pain. But the good news is that his 3am xray showed that the pneumothorax is resolving and his blood gas test was also really good. So today is a watch and wait day. He's still got a lot of drainage coming out of his stomach tube, and he's got all those normal cold symptoms we all see. And, like last November, he's using a LOT of oxygen. Unlike November, he is certainly NOT the happiest camper in the PICU. Right now he's sleeping quietly, which may be the best medicine he can get. I think I may try to sleep, too. Sorry there are no pictures. I haven't figured out if there's a way to connect my camera and kindle. Please pray that he will start using oxygen more effectively. When he's on 100%, we don't have any wiggle room.
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I'll keep praying for Aaron! And you too! :)ReplyDelete
I'm so sorry you're back! I had left just before getting your message. I'll be there tomorrow afternoon- bed 14. I'd love to meet you!ReplyDelete
Praying that your precious little angel gets well soonReplyDelete