We're home now. We came home yesterday afternoon. Aaron's pain seems to be under control with Lortab, but he is so very swollen. His circumcision site is looking a lot better, but his mouth continues to swell. I'm told it should peak at somewhere between 48 and 72 hours post-op. Hopefully we're closer to 48 than 72. I'm not sure how much more it can take. His poor lip has even split a little bit away from the site. The bruising does seem to be changing in a couple of spots to an older look, so that's a good sign.
He's spending most of his time asleep, which is probably a good thing. When he does wake, he seems content. There are no smiles yet, surprise, surprise. But he does turn his music on and play with his toys. He just looks at you with these big blue eyes that seem to say, I'm not sure what's going on here. But they're still so trusting at the same time. Please pray he feels better soon. It breaks my heart to see him looking so bruised and swollen.
In medical literature, babies with Trisomy 18 are "incompatible with life." Our precious son, Aaron, defied the odds, not only living, but thriving and loving his life. He passed away 13 years, 6 months and ten days after his birth. This is an effort to share his joy in his journey. Like the little purple pansy, he was tiny, but strong and still brightens his corner of the world.
I'm praying! Poor little guy. But he's tough - he'll make it and be better for it. I'm impressed that he can play with toys and turn his music on!
ReplyDelete