Um, yeah, except trach changes aren't much fun. At least not for us, not me, not Aaron. So like anything else I don't want to do, I tend to try to put it off, forget about it, try anything and everything else first.
Last week I said I was pretty comfortable where we were here at home. He was sick but we were managing it. And by Sunday, we weren't seeing much "sick" anymore. But his oxygen, it's been really weird. Like he does great on one to two liters when he's asleep. Awake? Well, that's another story. Like a story with six to eight liters of oxygen in it. I adjusted some more vent settings, (this time without permission, shhh, but watching his parameters to make sure he was still within safe limits). It might have made a small difference, but really, not much.
Then this morning (or late last night? I can't remember) I realized that his cuff wasn't holding any air. Like, none at all. I would fill it up, pull the syringe off, and it would deflate. All. The. Way. Yeah, I don't think it was helping much. So when he was awake this morning, I bit the bullet. It was right after Daddy had been holding him, so he was still satting pretty good.
But tonight, when he was desatting again and I was busy, I called into Andrew and Michael to turn him up another liter. I couldn't remember exactly where he was, but they reported a good wave pattern and sats in the high 80's. Quickest fix for that is to turn him up. When I went to check on where he was, they had turned him up to three. Yeah, up to three liters. And funny, this mama seems to be processing her own oxygen a bit better, too.