In medical literature, babies with Trisomy 18 are "incompatible with life." Our precious son, Aaron, defied the odds, not only living, but thriving and loving his life. He passed away 13 years, 6 months and ten days after his birth. This is an effort to share his joy in his journey. Like the little purple pansy, he was tiny, but strong and still brightens his corner of the world.
In the recovery room with his
signature "antenna." The only
sure place to put his IV is in
We’re in a room now and Aaron seems to be resting peacefully at the moment.Hopefully it will last for more than a moment.We decided that we’d stay as a precautionary measure.He’s pulled some funny stuff before following surgery and I really don’t want to do that at home.He’s still a bit high on his oxygen and his heart rate just doesn’t want to come down where it belongs. That may just be the pain talking.I hope so.His sound asleep heart rate is more like his awake-and-playing heart rate usually is.And when he gets upset, well, let’s just say it’s too fast.Not call-cardiology-right-now fast, but faster than we’re super comfortable with.But with pain meds on board and food in the tummy, maybe he’ll have a decent night.The plan is for a quiet, boring night and discharge in the morning.We’ll have to wait to see if Aaron has read the same script…