Compatible With Joy-Trisomy18: Aaron's First Year, part 2

Thursday, June 16, 2011

Aaron's First Year, part 2

This is the second half of the slide show we had at Aaron's birthday.

This one has been updated with some pictures from his party as well.

Thanks for being part of our lives, Aaron. You enrich us immeasurably.

2 comments:

AnonymousJune 17, 2011 at 8:12 PM
I am amazed by your sweet Aaron and how strong he is. I had a T18 baby back in August. It's not everyday you find another family who has been affected by this. I am glad that I have found you, but sad at the same time.

You can check out our blog if you would like. homeofthehones.blogspot.com.
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AnonymousJune 17, 2011 at 10:01 PM
I would be delighted to get together! I have been searching for another T18 family to connect with. I would love nothing more than to meet you and your family. I'm just in Springville, so I think I'm fairly close to you. Please e-mail me and let's set up a time. Is there anything you and your family need? Is there anything I can do for you?

Ashley Hone
bellabambina2007@gmail.com
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What is Trisomy 18?

Trisomy 18, also known as Edwards syndrome, is where a child has three of the 18th chromosome. Most people have two of each chromosome, one from mom and one from dad. In a trisomy, the child gets two of one chromosome from one parent and one from the other. Think tricycle, three.

Imagine if you made a batch of cookies and it called for two cups of sugar. Sugar is good, it's necessary for the cookies to turn out the way you expect them to. But instead, you put in three cups. You then proceed to mix and bake the cookies.

They're not going to be the way you expect, and it's the same way for that extra chromosome. Our bodies don't "read" the code well when there's an extra portion added in, and it causes all kinds of complications.

But just like "typical" children, there is a wide range of abilities and challenges for children with a trisomy. Many of the anomolies occur along the mid-line: the brain, the mouth (cleft lips and palates) the heart, lungs, diaphragm, and kidneys. Some are more severe than others.

Each child is unique, each is special. I like to use the sugar in my analogy because each one child is so sweet. In our home, we say that the 18th chromosome holds the secret to love. Aaron got an extra love chromosome, and he uses it to bless our lives.

Compatible With Joy-Trisomy18

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Thursday, June 16, 2011

Aaron's First Year, part 2

2 comments:

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