Six years on this earth, living, loving, enjoying his life.
When we first got the results back confirming Trisomy 18, I told my doctor that I didn't have any concrete reasons to know this, but I felt that his life would be longer than many others. It might be measured in weeks or months, but I felt it would be more than the minutes or hours that some have. She replied that somehow, she also felt that.
And here we are, six years, 72 months, 312 weeks later. There have certainly been ups and downs. And we've pushed the envelope on more than one occasion. But he's here, with us, playing right now in the next room while he watches a video on a tablet. And I'm so, so grateful.
Yesterday was pretty low key. That's okay, it's still good. A few friends came over including one we haven't seen in over 20 years. Talk about catch-up time.
Sweetaly Gelato made him an incredible cake. I'm not sure I've ever had a moister cake. Almost melt in your mouth moist. Seriously yummy.
And of course, we sent balloons off to his angel friends. He sent his last, and watched until it disappeared. I hope they find them.
Let us rejoice and be glad in it.