Compatible With Joy-Trisomy18: Happy 20 Months!

Monday, February 13, 2012

Happy 20 Months!

A dear friend created many trisomy awareness logos. They are found on t-shirts, mugs, handbags and many other items. She gave me permission to use a few of my favorites on bibs for Aaron. I got them done today (thanks to another friend and her ink jet printer!). I think they turned out to be a great birthday present. Happy 20 months, little man. And many, many more.

Breathe
Battle
Believe

Angels made with
47 pieces

Miracle in Progress
Living with Trisomy 18

Love Doesn't
Count Chromosomes

Trisomy 18 Ribbon:
I Live

Love the balloons Grandpa & Grandma brought!

Yummy Cake!

Happy Birthday!!

2 comments:

LisaFebruary 14, 2012 at 4:42 AM
Happy 20 months Aaron! I love your new bibs. Wear them with pride. :) God bless you!
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UnknownFebruary 18, 2012 at 10:40 PM
20 months! He is amazing! The big TWO is right around the corner!!!
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What is Trisomy 18?

Trisomy 18, also known as Edwards syndrome, is where a child has three of the 18th chromosome. Most people have two of each chromosome, one from mom and one from dad. In a trisomy, the child gets two of one chromosome from one parent and one from the other. Think tricycle, three.

Imagine if you made a batch of cookies and it called for two cups of sugar. Sugar is good, it's necessary for the cookies to turn out the way you expect them to. But instead, you put in three cups. You then proceed to mix and bake the cookies.

They're not going to be the way you expect, and it's the same way for that extra chromosome. Our bodies don't "read" the code well when there's an extra portion added in, and it causes all kinds of complications.

But just like "typical" children, there is a wide range of abilities and challenges for children with a trisomy. Many of the anomolies occur along the mid-line: the brain, the mouth (cleft lips and palates) the heart, lungs, diaphragm, and kidneys. Some are more severe than others.

Each child is unique, each is special. I like to use the sugar in my analogy because each one child is so sweet. In our home, we say that the 18th chromosome holds the secret to love. Aaron got an extra love chromosome, and he uses it to bless our lives.

Compatible With Joy-Trisomy18

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Monday, February 13, 2012

Happy 20 Months!

2 comments:

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