|Hanging out at one of Mama's appointments.
But it's harder than I'd like it to be. See, he's attached to a big oxygen tank, his ventilator (I don't think holding his breath for an outing would work real well) and his pulse/ox machine that measures his heart rate and oxygen saturations. Plus, we always have his suction machine close by along with his "go bag" for those "just in case" times, which do seem to come up fairly frequently.
And because we don't have a handicapped van, we have to load and unload all of that equipment, plus him, in and out of the car and onto his wheelchair at every stop.
So the long and short is, Aaron goes fun places, soccer games, ballroom concerts, and so on. But not so much to the places a lot of toddlers find themselves, the store, doctor's appointments for other people, and so on. We just don't run errands with him that much.
But a couple weeks ago, I was out with him and near Target, where I really needed to pick up some things. I waffled, a LOT. But finally decided to just bite the bullet and try things. And it worked pretty good! I put a blanket down in the basket (he still can't sit well on his own), put the oxygen tank next to him, the vent and pulse/ox in the front of the basket and hung the go bag on the handle. He'd been doing well without suction, so I risked leaving that in the car, knowing I could make a mad dash, or describe it well enough to someone they could grab it if it became truly necessary.
Do you have any idea how freeing this was? Now, I'm not for a minute thinking taking small kids shopping is the dream of a lifetime. I get it. I've DONE it, more times than I ever wanted. But to not be able to, to not even have the choice, and then to finally figure it out, well, it's been a couple weeks and it still makes me smile.
But it was a very sweet, special day. And I think my favorite picture is the one I got of Michael and Aaron, when Michael is still dressed in white. I love the bond between these two.
Even longer,' Pooh answered.”