In the morning, pre-Tylenol. Just not a happy camper. |
He spent most of the night and into the morning Monday throwing up, or at least trying to. Because of a surgery he had at four months, he actually can't throw up. We have to open his g-tube extension and vent it to relieve the pressure. But he can and did retch, and the food I gave him at 11 p.m. was still in his stomach at 5 a.m. (TMI? Sorry.)
Asleep, breath rate of 36, heart rate of 120, sats 90, on TEN liters of O2. Not cool. |
I started running Pedialyte in hopes of maintaining his hydration and threw on a bunch of breathing treatments. With this kid, anything that is a problem also causes problems for his breathing, and I mean anything at all.
I'm grateful for our big M-90 oxygen tanks. The concentrator just wasn't cutting it for most of the time. He was needing 12 to 15 liters of oxygen through his vent, and twice during the day, once in the morning and again in the early evening, that wasn't enough either. We had to bag him on eight liters just to maintain his sats. In other words, our home ICU was up and running.
Afternoon bagging session, and grins. |
But yeah, it did get him out of school for today. All the others are gone. Deborah's moved out, Mary, David and Jonathan have gone back to college (even though they don't start class until next week). And of course Matthew is in Canada. Joseph, Andrew, Michael and Aaron are the only ones left at home. I know for some that seems like a crowd. Here it seems pretty quiet.
Aaron's Christmas ornament this year. |
Sanity may be madness but the maddest of all is to see life as it is and not as it should be.
~Don Quixote
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