Yesterday morning, Aaron had a little bit of a runny nose. And when I say, "little bit" that's all it was, a tiny bit of clear snot that drained out when we moved him to his wheelchair. After school, his nurse said he'd had quite a bit more, but it was all still really thin and really clear.
At that point, I was thinking allergies. In fact, he and I had a little "argument." I was mentioning to his nurse that I was leaning towards allergies because he was so happy, because last time when he was sick, he wasn't happy at all. And he started nodding his head, "yes, I was." And I said, "no, you weren't," and shook my head. And more emphatically, he nodded, "yes, I was!" Trust me, he wasn't!
I wasn't sure if we would make it through the night, but hoped we would. In fact, I was hoping we might even be able to just stay home. Well, he made it through the night, in part due to his nurse doing CPT (chest physio therapy) almost all night long. But this morning, I think he decided he'd been nice long enough. He had let me sleep, but I was awake now anyway.
|His chest x-ray from this morning. Not great,|
but not too bad either. Frankly, it looks like him:
cloudy with a chance of junk.
I got about three minutes. Nose dive, again. So I started bagging again, this time giving him albuterol at the same time. Andrew wanted to help, and I did need another pair of hands, so he bagged while I suctioned and gave the albuterol. Again, it was several minutes, ten to 15, before I could try putting him back on the vent.
|This morning in the emergency|
department. He was a bit happier
when he had more support.
So we came up here, lights and sirens, bagging him all the way. We also were pulling a lot of junk out of him. Once in the emergency room, they were able to get him back on a ventilator, but at significantly increased settings.
Now, he's resting, but he's pretty miserable. He's tested positive for, wait, guess what . . . rhinovirus. Yep, his ol' nemesis. And we probably haven't reached the worst yet. Fortunately, we've still got a lot of wiggle room in what supports we can get here in the PICU.
Please keep him in prayer. This is going to be a rough time for him, and probably a longer stay, too. I had all sorts of plans for spring break, including catching up on sleep. We were going to get indoor/outdoor carpet put down on the ramp that our wonderful neighbor built. I was going to recover the rocker that has seen so many, many hours of use since he was born. I was going to put in raspberry plants, and even find my closet and laundry room. But apparently Aaron felt like spring break needed a vacation trip. Unfortunately, he didn't plan his destination as well as I would have liked.
But those things will still be there when we get home, eventually. When I was a kid, my mom had a poem about babies growing up that hung on the wall. And while he is my "forever baby," he won't "keep." So this week, and probably the next and maybe the one after that, I'll focus on him. And be so grateful that I can.
Oh, and if you want to see the quick, down and dirty updates, I do update his facebook page a little more frequently. Plus, you won't (always) be subjected to my inner musings and wonderings. Here's the link for it. https://www.facebook.com/#!/CompatiblewithJoy.Trisomy18.13