In medical literature, babies with Trisomy 18 are "incompatible with life." Our precious son, Aaron, defied the odds, not only living, but thriving and loving his life. He passed away 13 years, 6 months and ten days after his birth. This is an effort to share his joy in his journey. Like the little purple pansy, he was tiny, but strong and still brightens his corner of the world.
Today's been a rough day. Not so much for Aaron as for me. I'll write more about that later, when I've had some time to put together my thoughts. But the hardest part was a phone call that came just as we got home from Matthew's concert tonight. A beautiful baby girl was born with T18 to a family out in Eagle Mountain. We've tried a few times to set up a meeting, to get together. Each time, one of our babies would be struggling a little, so we put it off. Last night, little Alayna grew her angel wings and went home. I am so heartbroken for her family. I feel badly for each family I know of, but some just hit a whole lot harder than others. I just hurt so badly for them.