|Getting excited about his echo|
On Tuesday, hopes were pretty much dashed. Echos, or ultrasounds of the heart, are used to estimate pulmonary pressures. You know, the pressure between the heart and lungs. Aaron's single biggest challenge. While not exact, his echo looked pretty much like all his recent (meaning last few years) echos.
So then we looked back at his last heart cath from two years ago. That gives exact numbers. And those weren't great. In fact, as far as surgery options, they were downright bad. There are some numbers called "wedge" numbers. If they were to do a heart cath on most of us, ours would be about a 2. For surgery, they like them to be 5 or less. Aaron's were between 9.2 and 9.75. Yeah, not quite within range.
We will do another heart cath in July or August, but they don't expect the numbers to be optimal. At this point, I think I'll be happy if they're not worse.
|Whadda ya mean, I can't "help"?|
I don't know that we would have opted for surgery. You know, that whole "huge risk" and everything. Could he survive the first surgery? Could he handle the lower oxygen sats that it would cause? Could his lungs relax further so he could have the second? Could he survive that? You can see where this is going.
But on the other hand, fixing his VSD would allow him to someday possibly (probably) get rid of his oxygen tanks, and his ventilator. The freedom that would bring would be incredible! No longer would we have to measure outings by battery life and tank limits. I wouldn't have to carry an extra 25 pounds or so of equipment. He wouldn't have to be tethered to tubes (although he doesn't seem to mind them).
|Having fun at brother's play, "Peter Pan." |
Our own little "lost boy" who will
"never grow up."
But the truth is, he won't be able to benefit himself.
Years ago, my father flew rescue aircraft with the Air Force in Alaska. Their squadron motto was "That others may live." I guess in a way, it might be Aaron's as well.
― J.M. Barrie