Supports for Families Facing a Trisomy Diagnosis

This is by no means an exhaustive list, but it's a start.  Know that YOU are the parents and YOU should be able to make decisions for your child.  I firmly feel that God sends each child to a family that is uniquely qualified to love and know their baby, to make decisions in the best interest of their child.

General

Trisomy 18 Medical Study published in Oraphant Rare Disease Journal Oct 23, 2012 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3520824/


Trisomy 18  https://www.facebook.com/groups/T18Mommies/
Living with Trisomy 13 Group Page - https://www.facebook.com/groups/Trisomy13/
Trisomy Families https://www.facebook.com/groups/trisomyfamilies/
Hope for Trisomy - http://www.hopefortrisomy.org
Faces of Trisomy - https://www.facebook.com/groups/facesoftrisomy/
Trisomy Angel Parents - https://www.facebook.com/groups/TrisomyAngelParents/
Trisomy 18 Foundation Parents -https://www.facebook.com/#!/groups/ExpectingTrisomy18/
SOFT (Support Organization for Trisomy) Website - http://www.trisomy.org/
                NPO Page - https://www.facebook.com/Trisomy.
                SOFTGroup Page - https://www.facebook.com/groups/TrisomySOFT/
Partial Trisomy 3 - https://www.facebook.com/groups/147822368943/
Trisomy 4 (and 9p deletion) - https://www.facebook.com/groups/207372738050/
Trisomy 5p - https://www.facebook.com/groups/113369972072316/
Trisomy 8 Mosaicism - https://www.facebook.com/groups/2437375142/
Trisomy 9 Mosaic - https://www.facebook.com/groups/131181373635381/
Trisomy 14 Mosaic - https://www.facebook.com/groups/125824739443/
Mosaic Trisomy 22 - https://www.facebook.com/groups/177391992290377/
Trisomy X - https://www.facebook.com/groups/TrisomyX/

USA
Southeast Trisomy Families (SOFT) - https://www.facebook.com/groups/SET18/
Trisomy Families of CA (SOFT) - https://www.facebook.com/groups/TrisomyCalifornia/
Houston Trisomy Circle of Friends - https://www.facebook.com/groups/146113465429006/
Trisomy Families of the Great Lakes - https://www.facebook.com/groups/442251809134435/

Australia
SOFT (Support Organization for Trisomy) Australia - https://www.facebook.com/pages/SOFT-Australia-Support-for-Trisomy-1318-in-Australia/136979783071736

Ireland
SOFT (Support Organization for Trisomy) Ireland - https://www.facebook.com/pages/Soft-Ireland/193603640656322

United Kingdom
SOFT (Support Organization for Trisomy) UK - https://www.facebook.com/SOFTUK

2 comments:

  1. There are two more groups in the UK
    Edwards Syndrome Families UK
    Trisomy Families

    ReplyDelete
  2. Both are facebook groups, but I think there are also related websites and blogs. x

    ReplyDelete