Compatible With Joy-Trisomy18: Someday Was Never Actually Supposed to Happen

Saturday, December 23, 2023

Someday Was Never Actually Supposed to Happen

Oh, my baby.

My sweet, sweet baby.

Someday was never supposed to come.

Your heart, your big, not-so-strong heart yet beautiful heart, it just couldn't take it anymore.

I don't know how to do this.

At 12:20 this morning your wings were ready. My heart was not.

Someday was never actually supposed to happen.

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What is Trisomy 18?

Trisomy 18, also known as Edwards syndrome, is where a child has three of the 18th chromosome. Most people have two of each chromosome, one from mom and one from dad. In a trisomy, the child gets two of one chromosome from one parent and one from the other. Think tricycle, three.

Imagine if you made a batch of cookies and it called for two cups of sugar. Sugar is good, it's necessary for the cookies to turn out the way you expect them to. But instead, you put in three cups. You then proceed to mix and bake the cookies.

They're not going to be the way you expect, and it's the same way for that extra chromosome. Our bodies don't "read" the code well when there's an extra portion added in, and it causes all kinds of complications.

But just like "typical" children, there is a wide range of abilities and challenges for children with a trisomy. Many of the anomolies occur along the mid-line: the brain, the mouth (cleft lips and palates) the heart, lungs, diaphragm, and kidneys. Some are more severe than others.

Each child is unique, each is special. I like to use the sugar in my analogy because each one child is so sweet. In our home, we say that the 18th chromosome holds the secret to love. Aaron got an extra love chromosome, and he uses it to bless our lives.

Compatible With Joy-Trisomy18

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Saturday, December 23, 2023

Someday Was Never Actually Supposed to Happen

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