In medical literature, babies with Trisomy 18 are "incompatible with life." Our precious son, Aaron, is defying the odds and not only living, but thriving and loving his life. This is an effort to share his joy in his journey. Like the little purple pansy, he is tiny, but strong and brightens his corner of the world. If you'd like to see more pictures and his story from April 2010 to March 2011, go to Http://www.carepages.com/carepages/GiftfromHeaven
switched over about two hours ago, and he’s doing great so far.He’s even on 1 ½ liters of oxygen!He did really well all day on 40% oxygen bled
into the hospital vent and the same vent settings as his home one, so this
evening, we thought we’d try to switch back.He had been on better settings on the hospital vent, but our home one
isn’t as sensitive and can’t be programmed the same way.Hopefully, it all goes well.
One year ago after g-tube/nissen surgery
One year ago today, we came in for a g-tube and nissen
surgery.That surgery saved his
life.Unknown to us, Aaron’s airway was
collapsing, or actually, collapsed.Without that surgery, we would not have known.I don’t think he would have made it another
week.Thanks to many people involved in
his care, many prayers, and the grace of God, we still have our little
Today I’m grateful for medical technology and those who use
it to help us enjoy life.Today we have
a 15 pound portable machine that does the work that the iron lungs did when
children of my father’s generation had polio.