Sunday, April 8, 2018

Home from “Vacation”

 We did it.  We made it home.

Last week was Spring Break, and I guess he figured everyone else was going on vacation, so he needed to, too.  That or his brothers were trying to get out of work.  My plans included getting some yard work done and cleaning out a few areas of the house.  Yeah, guess whose plans got scrapped.  Oh, well.

Instead, Monday through Friday were spent at his “other home” and the brothers had a movie watching marathon.  I guess if you don’t get to go somewhere, it was a good second choice.

He’s doing better now.  I LOVE the way this kid breathes when he’s on steroids.  Unfortunately, staying on them all the time just isn’t an option.  He’s still having a few siezures here and there, but overall, the Keppra he’s taking seems to have made a big difference.  We finally ventured out today, and tonight he’s pretty wiped out.  Kid better get his beauty rest in.  School starts up again tomorrow and continues at a break neck speed for the next seven weeks.

In other news, his heart numbers have come down a bit.  They’re still not “normal” but from Friday night to Monday night they dropped from 219 to 180.  I’m hoping they’ll continue the trend.  He’s still on the vent 24/7 and I’m not sure how long it will be until he can come off again.  What I do know is that he’s going to keep doing things his own way.  And that’s just fine.

“The thrill of coming home has never changed.“
Guy Pearce

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