Today we had a real treat. Another Trisomy 18 mommy is in town to drop her son off at BYU. I hurried to finish my work so we could go visit. Her Krissy is 13 years old and so cute! She also has a trach but wasn't needing oxygen or a vent.
Those black threads, they're supposed to be holding that white flange down. Owie! |
It's a sterile procedure, so everyone even Aaron, used a mask. |
So here we are again, back up at good ol' PCMC waiting to have it restitched. Because he must have missed them up here, and one outing for the day wasn't enough.
Before we left, Andrew asked how long we were going to be gone. I told him I didn't know, it would depend on how busy they were and how long it took to get to us, but I didn't think it would be that long. His comment? "So you'll be back in about two days or maybe less?" Poor kid is just too used to us disappearing for days on end.
Stay tuned for our next post on back to school "shopping" for the medically fragile. Oh boy, the bases we have to cover...
Complacency is a state of mind that
exists only in retrospective:
it has to be shattered
before being ascertained.
Vladimir Nabokov
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