It may be a good thing that Aaron's start date was delayed. I'm still a novice when it comes to this back to school Aaron style. Didn't realize that I have to have oxygen pre-authorized from the insurance. Fortunately, the oxygen provider is willing to work with us, or he'd be out for another two weeks.
Then there's the training of his private duty nurse. I think we've got a great one. He and I and Aaron went down to meet with the school nurse and therapists and teacher and principal yesterday. I loved that when we walked in, his principal exclaimed, "Oh, Aaron! Your pictures just don't do you justice!!" And before we left, he was flirting with all of them. It's going to be a good year.
By last night, I had all his bags packed so his nurse could go through them. 'Cause see, if he's REALLY needing something, it's not good if it can't be found. It's not zero on a test, it's life and death, you know, kinda the "really big test."
Then we have the "go bag." That's probably the most important after the vent itself. Inside that, I carry a mini-hospital room. There's his extra trachs, his ambu-bag (for when he decides he wants more personal attention than he can get from the ventilator) stethoscope, emergency g-tube kit, and on and on and on. That one actually is probably more important than the ventilator. When he was lifeflighted, they didn't take the vent, but they took this bag.
If you really want to know what all we travel with, you can click here to go to our lists. Or just find the link at the top of the page.
Anyway, just for good measure, he does have a backpack, you know, the kind that all kids carry when they go to school. That's for notes back and forth with his teacher, any school-type things that he brings home. 'Cause this kid is going places. I'm so excited for him to do this. It almost reminds me of 17 years ago when Deborah started school. She was so ready, me, well not so much. But I knew it's what she needed, and has been so wonderful to watch her and her siblings blossom. I think it will be for Aaron, too.