Tuesday, October 11, 2016

Waiting, Waiting, Waiting...

Well, he looks great, and we're still here.

See, apparently this kid does nothing that's simple.  But I guess we already knew that.

Before we can go home, we need his new medication.  Except you can't just go down to the corner drugstore and pick it up.  Nope, it has to be ordered from a specialty pharmacy.  One headquartered in Tennessee.  And before that happens, it has to have a prior authorization from his insurance company.

If you've been following him for a while, you might remember this post from about three years ago.  Yep, same situation, except this time it's not just a pill, and I actually have to have equipment and training.  

Yesterday his doc came in and said, "it's a good thing you like us, 'cause this is going to take a least ten days."

What??  Oh, no, it's not.  (At least I hope not.)  I started working the phones and by last night, we had insurance approval.  Less than a day, not too shabby.

Now we're trying to get the medication and the training.  I'm really, really hoping to be home tomorrow.  That is, if all the little ducks line up in a row.  So far, they seem to be more interested in waddling off.

Every day we sit here increases the chances of him picking up a bug, which means a week in the PICU to the tune of about $10,000 a day.  Yeah, that's four zeros per day.  Plus further recovery time on the floor.

And besides, I really miss my own bed.

"You can't stay in your corner of the forest waiting for others to come to you. You have to go to them sometimes." 
A. A. Milne