Tuesday, March 1, 2016

Surgery Stress

 It's tomorrow, surgery day.

Assuming we continue to do well through the night.

He's been "weird" the past several days.  He's had "junk" in his trach, but I haven't been able to suction it out.  Poor kid has been through three trach changes since Friday night.  And he can usually go weeks without one.  We're kinda thinking it's allergies 'cause we're not seeing any other symptoms.  Nothing from his nose, nothing (really) from his trach.  He's pretty happy, not too tired.  He does seem to have a lot more tummy bubbles, but that's about it.  Who knows?  I guess he does but he's not saying.

Growing up - Hope

So today I tried to get everything else ready for tomorrow.  Except, there really wasn't much.  Well, other than the bath he has to have before we go.  I even took the time to update his picture collages.  I put them up to help the hospital staff see "him" for who he really is.  You know, our child, our happy boy, not the sick baby trying to fight off nasties.  

Joy - It's In My Smile

But then I got the call with the surgery time.  We've had to leave here as early as 5 a.m. before for a 6:30 check-in.  Once I got to leave about 8:15.  Tomorrow?  Well, we'll be hanging out until about 10:00 a.m.  Now I'm really not sure what to do.

I'm used to getting everything ready, and most of it loaded in the car the night before.  I make a list, roll out of bed and hit the ground running.  Tomorrow there will be time for breakfast, family scripture study, and the bath that I'm not giving tonight.  And the pre-surgery jitters.

Trisomy Siblings = Love

We check in at 11:30 with a 1 p.m. start time.  I'll be a little surprised if it isn't a bit later than that.  This surgeon has a reputation for being quite meticulous, and often takes longer than is expected, at least when Aaron has been with him before.  The OR is scheduled for three hours for this particular operation.  It's going to be a very long day.

I think we're ready.  I think he is.  I can feel the stress already.  I hate surgery.  But not doing it would be worse for him.  So deep breaths, we can do this.  Love my little bug.

“Storms make oaks take roots”


  1. We'll be thinking of you and praying for you!

  2. I want you to know that i as well as so many people are praying for you. I've told so many people about Aaron. My parents and I even had a word of prayer last night before I went to bed and we will do this this morning as well and I've told all of my dear friends about Little Aaron. I KNOW, He will Get through this. O heavenly Father, as today's surgery date has arrived, Please comfort little Aaron and his family in the way that Only you Jesus Christ can. Please watch over Aaron and guide the surgeon's hands. Lord? Please help this operation, and the recover to go as smoothly, and I plead with you o Lord please help Aaron's pain to be well controlled. Please give Aaron wonderful and beautiful music to listen to during his recovery as you did with me on my many many operations and the recoveries. Lord? You are the great physician who does heal and I know from experience that you are with the sick. Please surround Aaron's wonderful wonderful mother with a very special blessing. I ask these things in your name we pray O Lord, AMEN!

  3. I am praying for you Aaron! And I LOVE your mommy's idea of the picture college. The nurses should all get to see your beautiful smiles.