I didn't think I would see the day we would get to bring him home. I truly hoped we would, but didn't dare count on it. When they told us he could come home, I was beyond giddy. I was barely two weeks post C-section, so I wasn't supposed to be lifting things or running up and down the stairs. My poor kids. They were working jobs where they had to be at work at 5:45 a.m. and got home about 9:30 p.m. And I had them doing the running and lifting. FINALLY, they persuaded me they needed some sleep.
He was so, so tiny. Only 4 1/2 pounds. And while I didn't want to think about it at the time, I knew he wasn't sent home to live. He was sent home to die. Had a typical baby been having the apnea episodes and desats he was having, had their labs looked like his, they would not have been discharged.
I knew that, and I was (sorta) okay with it. I'd known of other babies who they tried to get "stable" before sending them home, and after a while, their bodies just were too tired and gave up. I wanted to get him home, to make the memories we could before he went Home.
Today, though, today he's happy and thriving. Today Aaron went to school. He had a great time! Apparently it was kinda a sad day at school. His nurse reported that there was a new student who was having some separation anxiety and was upset. Several others picked up on his sadness. But not Aaron! He had a great day, worked hard. He even got to play in wet sand which I'm told was a big hit!
Yep, our "incompatible with life" little man is definitely "compatible with joy." And we're so grateful he is.