Tuesday, July 26, 2016

Run Away!

Fun sticker child life made for his bed.
Yep, that's the plan:  Run Away!!  Of course, we have to turn around and come right back for clinic visits tomorrow, but still...

We've made it back down to where his oxygen needs are manageable at home.  Seriously, that's what this whole visit has been about.  His sick little lungs needed more oxygen than our home concentrator was able to provide.  But yesterday we worked hard to keep him stable on less.

This building is across the street from the hospital.  We
watched it go up, and they've left to giant builder bear
stickers on the windows.  Fun. 
Sometimes the impulse has been to turn him up and not try to figure out the why behind the increase.  I mean, it's just a little bit, and a little bit more, until it's actually a long ways from where he started.  But yesterday's team of nurses and techs really put forth an effort to move him around, suction, make sure probes and leads were actually accurate instead of just assuming they were.  And while he did go high for a little bit, it wasn't long.  So I think, I hope, we're good to go!

There have been some bumps this time around and I'll be working with some powers that be to make sure they don't happen to others.  But by and large, the staff up here has been wonderful.  Plus, there are some really fun friends who make it worthwhile, and frankly, this is the only place we ever get to see each other.

And there's always a fun touch of whimsy.  It's Christmas in July, and Spidey is all decked out.  Makes me grin.

This is view from our window.  It's hard to find it in the light, but at night, the Salt Lake Temple is a beacon in the darkness.  There have been some frustrating moments this time around, but when I look out at the Temple, I can remember that it's going to be okay. 

“When you mature in your relationship with God you realize how suffering and patience are like eating your spiritual vegetables.” 
― Criss Jami

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