|Monday afternoon. I admit, I chose his shirt|
because the caption echoed my feelings.
Except Sunday afternoon, he started struggling again. It wasn't super bad. Just a bit junkier, more runny nose, and more oxygen. But all his secretions were clear, super clear. Like usually when we suction his trach we get cloudy white fluff, but even that was a lot more like water. Still...
|Not terribly different than his|
usual, but there's some
definite clumps of patchiness.
Yep, that's the bad stuff.
(How's that for medical speak?)
He slept well Monday night and was ready and raring to go Tuesday morning when it came time for school. I did hold off on accepting an assignment just in case... Well, there were a couple people in his classroom who weren't feeling great, so I went over to get him early in the afternoon. He decided that maybe HE wasn't feeling awesome when we got home. We ended up maxing out on his oxygen and his albuterol, and still not making headway.
|Feeling quite pleased with himself for |
engineering all this.
Anyway, x-rays and labs seem to show a pneumonia, and he's gotten worse since we got here. Last night was kinda rough. He found himself a spot in the PICU on a ventilator that can deliver up to 100% oxygen. They've got some high-powered IV antibiotics going. And he's flirting with the nurses and making new friends with staff who haven't met him before. I'll tell you, this kid...
At least he's happy, right? He's always happy. Man, we could all take lessons from him.