|Chillin' on my way to|
PCMC for a check-up.
Yesterday, Aaron went to trach/vent clinic for a check-up. He's looking great! He's 10.85 kg, or 23 lbs 14 oz. He's essentially the same size as all his siblings at this age. AND he's been tentatively cleared to travel this summer to see family. All his doctors kind of shrugged and said, "I don't see why not." YEA!!! Now, as far as getting off the vent, well, that one remains a mystery. Kinda up to him and so far, he's not talking.
WavingAaron has reached a new milestone, but unfortunately, he doesn't want to perform for the camera. Last week, William was waving at him, opening and closing his fingers. Aaron watched for a little while, and then started doing the same thing with his own hand. This is doubly exciting as most kids with T18 struggle to open their hands. We've been working on helping him open his since the day he was born. He repeated it again on Sunday. But since then, he kind of just give me his cute grin that says, "That's funny, Mom. Keep doing it." So I'll just have to keep trying to catch him at it.
Avery Lynn and her bucket listAvery Lynn was diagnosed last week with Spinal Muscular Atrophy, a degenerative disease that will probably take her life before she is 18 months old.
She has a bucket list of things she wants to accomplish before she goes. It's got a lot of the things you might expect on there, such as learn to play an instrument, celebrate a birthday, meet Santa Claus, be on TV.
But then there are some others that you might not think of. Mow the lawn, play barbies with her cousin, take out the trash with Daddy, get an allowance, hide from Mommy and Daddy when they come home from work. Play in the mud, talk to Mommy and Daddy. Throw a tantrum in the middle of a department store.
These ones, they're the ones that get me. What kind of miracles do we get to participate in each day? It's the little ones that grab you. It's the little things we take for granted. The smiles, the hugs, the silly times and the frustrating times. That's what makes a life worth living. I remember the many, many times I wished my toddler would be a bit quieter so I didn't have to take him or her out of a church meeting. Do you have any idea what I would give to have an active, rambunctious, LOUD 22-month-old to take out now? So celebrate those moments. Those ordinary, wonderful, life-affirming moments. And hug your loved ones.