Aaron's getting sick again. I hate the way it raises my heartrate just when he catches a cold, or starts having trouble with his feeds. The last few times he's done this, he's tolerated it well enough to stay at home. But still, I worry and start planning for the "what ifs".
He has two ear infections, much more gas in his tummy, slightly higher oxygen needs. I don't think the frequency of his alarms has changed, but his activity level has. Normally, when he's playing around, his movements cause the vent to think there might be something wrong. Or he's wiggling too much for the oxygen sensor to pick up. Now, he's sleepy or sleeping, and the vent alarms, or his oxygen dips.
Oh, and he's got all those fun secretions known as snot coming out of his nose, too. When he's awake, he almost thinks it's funny to blow those bubbles, at least until I come after him with suction. Yeah, not too fond of that. At least he can move to try to get away. I'm trying to be grateful for the small things.
Yesterday, the Wolf/Bear den combined for a field trip to the fire station here in Alpine. Andrew asked the two guys doing the tour if either of them had ever helped save Aaron Peterson's life. Both of them said they'd been here, on more than one occasion. I'm so grateful for their help. We have such wonderful medical personnel, all the way from the paramedics to the staff at PCMC. But I wish so badly that we only knew them socially.
I love my bug with all my heart, but sometimes I long for the days when my baby would catch a cold and I'd try to figure out if they needed to be seen about a possible ear infection, or maybe we just needed to keep trying to chase them down to wipe their nose before they used a sleeve. Now, I can see myself if there's an ear infection (he gets a bloody discharge) and treat it with the drops we always have on hand. No, I don't miss hauling into the pediatrician's office. I just miss that that was my biggest worry.
As for me, the prayers for my shoulder are certainly helping, as are all the things my family has pitched in to help with. It's still painful, and I still can't work, but most of the time it's more of a dull ache. And while I hurt when I wake up, it doesn't keep me from sleeping anymore. That is HUGE. We still don't have any answers yet as to why or how long it will go on. Sometimes things move very slowly...
In medical literature, babies with Trisomy 18 are "incompatible with life." Our precious son, Aaron, defied the odds, not only living, but thriving and loving his life. He passed away 13 years, 6 months and ten days after his birth. This is an effort to share his joy in his journey. Like the little purple pansy, he was tiny, but strong and still brightens his corner of the world.
I clicked over here from Utah Kids. :) My Becca is 12 and still "plays" with her boogers... making cool noises that just sound gross to the rest of us! :D I think it's great that you get a sign when he has an ear infection. When Becca was tiny we'd go in and she'd have raging ear infections in both ears and we wouldn't even know because her pain tolerance is so high. Glad that you have an immediate solution with the drops. :)
ReplyDeleteI am so sorry he is sick. Our 7 year old started getting seizures the last time he was VERY ill. It scares me what little thing we can get hurt by. I hope he stays healthy. We are pretty close by and if you need anything picked up from a pharmacy or even a listening ear, I am here.
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