In fact, we've been here three weeks today, total of 22 days, a tie for our longest stay.
BUT we're heading home. Need one final consult with ENT and an oxygen tank and we'll be gone.
So grateful to be home for Christmas, just to be home regardless of the season.
He is still so very tired. I'm hoping we see him perk up once he's back with family. He still needs continuous feeds. I'll work him back to baseline at home. But he no longer needs IV antibiotics or fluids. He's way down on his oxygen and his vitals haven't looked this good for WEEKS! Like just after his last surgery where we fixed the hole between his femoral vein and artery. No fever for the past 24+ hours.
It's time.
Yay for home, for family, for Christmas.
I'm so grateful to be taking him home. Stays like this make a mama's heart and head go places they shouldn't. We are so thankful for his continued presence with us this side of heaven. It's a gift I don't think I will ever take for granted. A precious gift denied to many others. I don't know why some stay and some don't. They are no less loved and cared for. And missed.
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