In medical literature, babies with Trisomy 18 are "incompatible with life." Our precious son, Aaron, is defying the odds and not only living, but thriving and loving his life. This is an effort to share his joy in his journey. Like the little purple pansy, he is tiny, but strong and brightens his corner of the world. If you'd like to see more pictures and his story from April 2010 to March 2011, go to Http://www.carepages.com/carepages/GiftfromHeaven
I don't know what's happening, but I think we might have turned the corner. Aaron's slept peacefully all day without any fever, and starting around 5, he starting increasing his sat rates. He was needing at least 4 liters of oxygen just to stay in the lower 90%. Just before 5, he started going much higher on his sat rate and we started turning down the oxygen. He's on 1 1/4 liter right now and sitting at 99-100%! If this keeps up, we may get sprung tomorrow!!!