Compatible With Joy-Trisomy18: Please Pray

Friday, October 28, 2011

Please Pray

Please spare a minute and pray for Aaron. He's been in the hospital since last Sunday fighting a virus. We don't seem to be making any headway on it. I went home this afternoon for a few hours, and while I was gone, the hospital called. He dropped his sats into the 80's and wouldn't come back up even with 10 liters of oxygen bled into the vent. They had to bag him for 30 minutes to bring him back up. This earned him a quick trip back to the PICU.

When we got back tonight, he was back on the hospital vent and looking pretty good. But I think we've lost all the ground we gained a few days ago. Please pray that he can kick this. We need our little bug to get better.

1 comment:

ParkerMamaOctober 29, 2011 at 3:44 PM
Ah! I just saw this! Your guy is always in our prayers! How is he doing today? Feel free to give me a call if you need to talk! I'll keep checking back.

Tammy and Parker
wwww.prayingforparker.com
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What is Trisomy 18?

Trisomy 18, also known as Edwards syndrome, is where a child has three of the 18th chromosome. Most people have two of each chromosome, one from mom and one from dad. In a trisomy, the child gets two of one chromosome from one parent and one from the other. Think tricycle, three.

Imagine if you made a batch of cookies and it called for two cups of sugar. Sugar is good, it's necessary for the cookies to turn out the way you expect them to. But instead, you put in three cups. You then proceed to mix and bake the cookies.

They're not going to be the way you expect, and it's the same way for that extra chromosome. Our bodies don't "read" the code well when there's an extra portion added in, and it causes all kinds of complications.

But just like "typical" children, there is a wide range of abilities and challenges for children with a trisomy. Many of the anomolies occur along the mid-line: the brain, the mouth (cleft lips and palates) the heart, lungs, diaphragm, and kidneys. Some are more severe than others.

Each child is unique, each is special. I like to use the sugar in my analogy because each one child is so sweet. In our home, we say that the 18th chromosome holds the secret to love. Aaron got an extra love chromosome, and he uses it to bless our lives.

Compatible With Joy-Trisomy18

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Friday, October 28, 2011

Please Pray

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