In medical literature, babies with Trisomy 18 are "incompatible with life." Our precious son, Aaron, is defying the odds and not only living, but thriving and loving his life. This is an effort to share his joy in his journey. Like the little purple pansy, he is tiny, but strong and brightens his corner of the world. If you'd like to see more pictures and his story from April 2010 to March 2011, go to Http://www.carepages.com/carepages/GiftfromHeaven
Aaron has been stable all day, thank goodness. He's been getting a lot of support from the hospital vent and has not come down on his oxygen, but otherwise it's been a good day. His x-ray from this morning showed his upper right lobe opening up. This saved him a trip to the ER to have it sucked out with a bronchoscope.
Getting ready for cast removal.
We're starting to run out of IV sites. He keeps sweating them out of his head, which is too bad. It's my favorite place. Mostly because it goes in so smoothly. He's such a hard stick in his hands and feet, that they really have to poke and prod and dig to get one in there. Besides, if it's in his head, he can still play with his hands. So the casts came off today. He's not sure what to think about it. It's been three months since anything but casting material touched his skin on his legs, and I think he's finding it a bit unnerving. But I'm sure he'll get used to it.
After his casts came off. We're going to have to work on those leg muscles.
When I was home yesterday, I bought him a little friend. When I showed him the pumpkin this morning, he was a bit concerned. He looked at it as if he thought he might need to be afraid. After studying it for a while, I took his hand and rubbed the pumpkin with it. That's all it took. He broke out in big smiles! A new friend!
Anyway, we're enjoying that he's stable. The only time he dropped down much was when he disconnected the vent and it took a couple minutes to discover it. (The hospital vent doesn't scream as loud as ours does, and it goes off for a lot more reasons.) Imagine that, no breath, no oxygen, dropping sat rates. Who'd have thunk it? Thank you all for your prayers. Please keep them coming. He's not well yet.