|Sleepy boy, with NO vent circuit!|
|No lights! The vent is off.|
Also, having a machine breathe for you for almost two years, 24/7, means that your muscles loose tone and strength, not to mention, the body can "forget"how to breathe, or lose the drive to breathe.
From what we have going, it looks like he needs to simply strengthen those muscles again. Many people, even if they can be off a ventilator while awake, need it when sleeping. Even asleep, he does well. His heart rate and breathing rates are slightly higher than normal, but still well within his normal limits.
By the time he gets to his third sprint, it's certainly harder for him. He needs a little more oxygen, and he has to work a little harder. Sometimes at the beginning of the week, I'll cut the third sprint off early. But by the end of the week, he's sailing along again.
So here's our schedule. I haven't cleared it yet with him or his doctor. I doubt the doctors will have much to say, except they may want us to do more with it at night. Right now, I don't have written orders from them, so it all has to be done during the day when I'm around. His nurses can't change him from the vent without a medical order.
|The schedule?? (red is time off the vent)|