Both Aaron and I have had some health challenges the last couple of weeks. But maybe, just maybe we have fixes for both of us. And fixes that won't involve multiple studies, hospital visits, and so on. Yeah, we don't get too many of those, especially with Aaron.
He's been struggling with his oxygen. Yes, again (still? always??). Not huge amounts. Just enough and frequently enough to make me sit up and take notice. And then we've also been using his rescue inhaler for his asthma, quite a few times in fact. So I got to thinking about what's been happening.
Some background, he uses two different asthma inhalers. One is his rescue med, his albuterol. We use that when we're in trouble. The other is his controller, or his maintenance med, his Advair. My understanding is that one comes in two different doses. Aaron's is the highest. And he gets two puffs twice a day. That is A LOT!!! So the pulmo wanted us to try to wean him down a bit, and I was all for it. Two weeks ago we went to one puff in the morning and two in the evening. Apparently it took a little while to catch up with him. By Tuesday though, he was trying to get his message through loud and clear.
I had told Andrew and Michael we'd go play at Seven Peaks on Tuesday and arranged for a nurse to come in. But by that morning, I wasn't leaving, or at least going very far. He was just needing too much oxygen and too much rescue on Monday. But after talking to our trach whisperer, we put him back on his two puffs twice a day and also added in his albuterol on a schedule for the next two days. Guess what? It worked! My high maintenance baby wants to make sure he stays that way. And what this kid wants, this kid gets.
|These two cuties have been hanging around our yard|
the past few days. Kinda nice as they're helping trim
the grass that we can't get 'cause the string trimmer
broke, again. Simple fix, maybe?
But again, here's hoping it's the simple things. Aaron's oxygen needs stay where they're supposed to, and the earth stays spinning the way it's supposed to, and not off it's axel like I think it's been. That would be really nice.
By the way, Michael just asked me how many days Aaron has been alive: 1500 today!!