|Left - Aaron last week playing with some toys.|
Right - Aaron one year ago in the same size corner chair.
He's grown so much!!
Aaron is also really enjoying his hearing aids. They help him hear, but also provide new things to throw and chew on. Yes, they're multi-purpose, but we try to keep getting them back in his ears. It takes about 20 seconds after I put them in before they turn on. It's so fun to watch as they do, because his eyes will get really big and you can see the wonder on his face as he hears all the new sounds around him.
Last Saturday, at the SOFT picnic, my pulse/ox monitor (measures amount of oxygen in his blood) decided to quit on me. It was a different model than we'd had and the battery died after just one hour. So when we got back to the car, I plugged it into the car charger. Because it hadn't been working for about 2 hours, it wasn't on Aaron and was just dangling on the floor. I thought all the Herbie enthusiasts might like to know that my van has a heart rate of 55 beats/minute and an oxygen saturation of 77%. So maybe there is something to the idea that cars really are alive! Of course, when I put it on Aaron, it read "System Failure." They brought me a new one that night.
Aaron now has four teeth, one on top and three on the bottom. He's going to have to give up a favorite way of being comforted now. No way I'm going to be rubbing a bottom gum with three teeth in it. They're sharp!
We've decided to go ahead with surgery for Aaron. All along, the doctors keep saying, "He's not acting like he's supposed to with Trisomy 18." Meaning, he's doing much, much better. He's never had any trouble with anesthesia before and so we're hopeful that this may be a same-day procedure. The doctors at Shriners have consulted with cardiology and his admitting team at Primarys (who are all very familiar with him) and the plan is to admit him after surgery with the option of going home same day if he does really well. In fact, that's what they all expect, but want to play it on the safe side. It's scheduled for Friday morning at 7:30. Please keep him and his doctors in your prayers.
I was in Costco the other night and my cashier and a bagger were talking about working with another co-worker. They were talking about her with a little bit of trepidation and I thought I heard something sad. So I asked them point-blank about her. Turns out her toddler was killed in an accident not too long ago. My heart broke for her, and also a little bit for them. As I left the parking lot, I realized what it was I wish I had said to them. I would have told them, "Please, find out her son's name and use it. You won't be reminding her that he died. She will always know that. You'll be letting her know that you remember he lived."
On a happy note, we finally celebrated Michael's 5th Birthday with his friends. His birthday was last July but his party got derailed when Aaron had to go back in to have his lip redone. Last year, on his 4th birthday, Aaron was in the hospital in heart failure. I came home that evening to spend some time with him for a family party, and went back the next day. Michael is such a wonderful big brother to Aaron. He loves him so much and is so careful with him. It would be so easy for him to resent him or feel put off by him, but he doesn't. He just accepts him and prays for him daily. I was reading some old Facebook status updates from a while ago. One day, Michael asked me if Heavenly Father heard him when he prays for Aaron. I assured him that, yes, He most certainly does. And He probably hears Michael's prayers more than anyone else's.