This morning, I was, once again concerned about Aaron. As I was getting ready, I was pondering and praying and going over everything in my mind. He is doing well, just creeping up on his oxygen, and has been for the past three weeks or so. We've been at his upper baseline or higher the whole time, except for about 4 hours on one day. As I was thinking about the whole picture, I also realized he's been snoring and vocalizing just a bit around his trach. Then I realized that his worst times are when he's asleep, read "very relaxed" and if I sit him up in a more upright position, he does better. This is what he was doing last December when they brought us in to add a cuff to his trach to help him oxygenate better. My best guess is that he's grown enough to be leaking air a lot more around his trach. This would mean that he's not getting the oxygen or pressures that he needs to keep his lungs open well. So I came out and put in .5cc more of air into his cuff and, lo and behold, dropped his oxygen usage! He's had a good day too. He slept through Sacrament Meeting and Sunday School, and was awake and playing and smiling in Relief Society.
I got up this morning to hear someone in the kitchen. That someone was my oldest daughter, Deborah, making french toast for me. Something you have to know is that Deborah believes getting up anytime before 10:30 a.m. constitutes cruel and unusual punishment. But she got up before I did at 5:50 to have breakfast for me.
Another payday, this morning the graduating seniors (some of them, we have 14!) spoke on mothers. Mary made me cry almost from the start. She started with a quote from Washington Irving
“A mother is the truest friend we have, when trials heavy and sudden, fall upon us; when adversity takes the place of prosperity; when friends who rejoice with us in our sunshine desert us; when trouble thickens around us, still will she cling to us, and endeavor by her kind precepts and counsels to dissipate the clouds of darkness, and cause peace to return to our hearts.”
Yesterday, my mother-in-law said she was "listening with her heart" and Aaron told her what he wanted me to have for Mother's Day. I came home to a gorgeous hanging basket full of flowers. I cried when I saw it. (I seem to be doing a bit of that lately.) And William has been working since last night on a wonderful steak dinner for tonight. And to top it all off, the rain that was coming today, held off until this afternoon so Aaron could go to church. I'm glad we live in a desert, because it takes me so long to load and unload him, and ventilators and other equipment aren't real compatible with water!
Since last Wednesday's adventure with his sats, things have been more stable for Aaron. Thursday was gorgeous so we walked up to Matthew's soccer game with the stroller. We also got to see Mary & David reffing a girl's soccer game as well. They were just on the next field.