*******************
Page 1 -- this is the most important page
Name MEDICAL
ACTION (full code, dnr, no cpr, whatever)
123 Main St
Anytown,
ST 00000
Dad
& Mom’s names
123-456-7890
hm
123-456-7890
cell
Current Diagnosis
(list
in descending order of importance)
Trisomy
18
Cardiac
issue
Pulmo
issue
Etc.
Chronic
cuteness
Current Meds
(medication
& strength) amnt
& freq
Oxygen
(yes, it’s a med) continuous
Sildenafil
2.5 mg/ml 2.5
ml q 6 hr
Discontinued Meds
(same
set-up as current meds but w/ dates and reason)
Septra 3.0
ml bid m/d-m/d/yy UTI
Ciprofloxin
100mg/ml .75
ml bid
m/d-m/d/yy
pneumonia
1.5
ml bid
m/d-m/d/yy
tracheitis
Create text box w/ feeding info formula, feeding sched, & 24 hr total. |
Current Physicians &
Providers
(primary
care first, then down in order of importance)
Best
Doctor, MD pediatrician
357
S. Center St
Anytown,
ST 00000
987-654-3210
987-654-1230
fax
In-home
nursing
987-456-1230
MD cardiologist
phone
MD
pumonologist
phone
MD urologist
phone
MD geneticist
phone
Early
Intervention
phone
OT phone
PT phone
wheelchair
shop
phone
– contact name
Home Health Equipment
(include after hours emergency #)
Company
name, phone
Oxygen
(what they provide)
Company
name, phone
Trach/Vent,
O2 monitor, feeding supplies (what they provide)
Pharmacies
Name
of pharmacy
Phone
number
Fax
number
Hospitalizations
(list
most recent first)
Dates admitted
Hosptial
Dx:
Rx:
Procedures
done, other pertinent info. Try to
keep it short.
mm/dd-mm/dd/yyyy
PCMC
Dx: Tracheitis
pseudomonas, eye infx
Rx: Cirpo
5g/100ml 1.5 ml bid for 10 days
2/18-2/24/2011
PCMC
Dx: Psuedomonas
pneumonia
Rx: Cipro
100mg/ml 0.75 ml bid, Inc tidal volume 70, 1 ml air in cuffed
trach
Synagis
m/d/yy
mm/dd-mm/dd/yyyy
PCMC
G-tube, Nissen,
Tympanostomy, Bronchosope m/d/yy
Tracheostomy m/d/yy
Ventilator
settings
18 bpm
50 tidal volume
0.3 sec/I time
13 pressure support
8 PEEP
Alarm 45 high, 5 low pressure
Sensitivity 2
Limited
echo m/d normal cardiac function, PHT not measured
Discharge: Inc Previcid from 1.0 ml to 1.33 ml
daily.
mm/dd-mm/dd/yyyy
PCMC
Dx: Hypoxia
Aspiration
Pulmonary
hypertension
CHF
VSD
NJ
tube placement – 44 cm nose to hub.
24 kcal breastmilk/formula.
456 ml@22ml/hr over 24 hours
Mm/dd-mm/dd/yyyy (in this case, since it’s
NICU, from date of birth to discharge)
UVRMC NICU
Dx: Trisomy
18
Respiratory insufficiency
Mild pulmonary hypertension
VSD
Dysplastic tricuspid valve
Rx: Poly-vi-flor
w/ iron .05 ml/daily
O2
¼ l/min
Doctor’s Visits
(again
list most recent first, record provider visits & telephone calls)
Date Dr.
(full name) Notes(try
to keep to 1-3 lines, very brief overview)
5/9/11 T/C
cardio Inc
sildenafil to 2.5 ml q 6 hr based on new weight.
5/6/11 Dr.
K Weight
check – 5.9kg; inc feeds to 720 ml/day, prevcid to 2ml
5/4/11 T/C
Dr K HUGE
desat (33%), order labs/x-ray @ Riverton.
X-ray good,
most
labs good, WBC 19,000. Rx cipro1.5
bid for 10 days.
5/2/11 N
H, AUD ABR
test shows almost no hearing, but responds to aud stimuli
with
movement and inc heart rate. Refer
to School for
Blind
and Deaf for PIP EI.
3/29/11 Shriners Ortho
consult. Splints for hands, 4-5 hr for thumb, sleeping for
resting
splints. Spine okay. Club foot clinic in June
3/25/11 Dr.
K 9
mo check up. Looks great! Last Hep B & Synergis shot
24
½ inch, 12# 1oz, head circ 40.9cm, labs in 1 month
3/9/11 Trach/vent
clinic Increase
feeds. Keep 1ml air in cuff. Place trach when
inhaling.
Check ear tubes during lip repair & do ABR. Lower brady setting to 60. 2nd flu shot. Rx: Tramcinolone acetnide bid prn for g-tube
Early Intervention or other
Therapies
(use
same format as dr visits)
4/1/11 OT Use
ball for stretching. Lie down on
lap for tummy time.
3/23/11 OT Work
on standing muscles. Stretch hands.
Sitting. Reaching
for
objects,
swinging in a blanket.
2/8/11 Hearing
test Referred
both ears. Need ABR
10/8/10 OT Use
yoga ball for strength training.
Cellophane as
visual/auditory stimulation. Keep stretching hands
8/27/10 self
decision Suspend
use of bottle & oral feeds.
Much fussier, gagging,
vomiting after feeds, mult desats. Wonder if, although he can protect his
airways, if he gets “tired” & it’s too hard. Will try again starting next Tuesday.
8/31/10 self decision Discontinue bottle indefinitely after call to Dr. K.
Outpatient Studies
(studies/labs
done on an outpatient basis – same format as dr visit)
7/30/2010 PCMC
Echo
8/17/2010 PCMC-Riverton Swallow
study
9/8/2010 AFH Hearing
screen DPOAE
*Use
footer to date each time you update so you know how recent info is.
*Use
abbreviations common to your area to save space – i.e. in Utah, everyone knows
that PCMC is
Primary Children’s Medical Center and UVRMC is Utah
Valley Regional Medical Center.
*Make
changes you need to make this work for you. It is not a Bible.
It is a work in progress.
I wish all of my families with chronically ill patients would create a list like this. I would add allergies to page one though.
ReplyDeleteOops, it doesn't copy and paste real well onto blogger, so I was kind of recreating it as I went. On my sheets, the ones clipped to his meds chart, it says in bold, right below the vent setttings box: No Known Medical Allergies and Immunizations Current (because they always are). I agree. a MUST for any EMS trying to treat a patient.
ReplyDeleteWe keep something similar for Lily. However, because her allergies are extreme, we list them above her diagnoses. Versed, a very common in-the-field sedative, causes Lily to code, her heart and breathing to stop completely. None of the rest of her allergies are THAT bad, but I agree with you and the above commenter... we have to share those allergies to protect our kids.
ReplyDeleteoh wow this is very nice! Love it!
ReplyDelete