tag:blogger.com,1999:blog-542419411538614257.post1092748628395175341..comments2024-03-24T13:47:13.226-06:00Comments on Compatible With Joy-Trisomy18: A New Angel for Christmas CompatibleWithJoyhttp://www.blogger.com/profile/15804848700505881466noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-542419411538614257.post-89580041303602132912017-11-03T18:13:23.284-06:002017-11-03T18:13:23.284-06:00I am Lily's mother.
I always thought I respon...I am Lily's mother.<br /><br />I always thought I responded to this post; perhaps it was just to Rebekah personally. I've always felt so blessed and so loved that Rebekah wrote this for me.<br /><br />Life has gone on. She was right; it's different. But different has its own beauty. Lily has an older sister and a baby sister who was 8 months old when Rebekah wrote this; Lorelei is now 9 and in the 4th grade at the school they attended together and Lydia is 19 months and doing things every day that Lily was never able to do and would have loved to see.<br /><br />Right before Lily died, I caught a picture of her and Lydia and home in Lily's medical bed. Lydia is climbing on Lily and playing with her ventilator tubing and trach. It's not a comfortable sensation, but Lily is grinning so wide with her dinosaur teeth (they grew in crooked while intubated). It is easy to see she loved it.<br /><br />Lydia has that smile now and it's pretty clear to see our family has our own little angel watching over us.Daniellehttps://www.blogger.com/profile/15436643238936392100noreply@blogger.comtag:blogger.com,1999:blog-542419411538614257.post-74182789916297435102016-12-11T22:07:01.381-07:002016-12-11T22:07:01.381-07:00My prayers go out to both your families, to the he...My prayers go out to both your families, to the health care workers & Dr's as well. Your attentiveness exceeds far, not every parent would be able to handle the Extrodinary care you must provide. Each one of you are so very special, sending love and strength. Anonymoushttps://www.blogger.com/profile/17473812488555479309noreply@blogger.comtag:blogger.com,1999:blog-542419411538614257.post-30475944349323171602016-12-11T21:42:35.679-07:002016-12-11T21:42:35.679-07:00I lost my Lily too.....we referred to her conditio...I lost my Lily too.....we referred to her condition as Lily Drumm Syndrome. So very sorry 😔Anonymoushttps://www.blogger.com/profile/15897044815380731454noreply@blogger.comtag:blogger.com,1999:blog-542419411538614257.post-41420520374301678642016-12-11T13:49:54.149-07:002016-12-11T13:49:54.149-07:00Big hugs from Alabama. I know when any of our fri...Big hugs from Alabama. I know when any of our friends in the online community for my son's medical challenges passes, it continues to hurt, and we all feel it, but that's not the same as someone who's literally been next door. <3 jackmanmdhttps://www.blogger.com/profile/01007054000095754165noreply@blogger.comtag:blogger.com,1999:blog-542419411538614257.post-31602721192801731662016-12-11T10:45:04.787-07:002016-12-11T10:45:04.787-07:00Absolutely beautiful ! Absolutely beautiful ! Stephanie Eldridgenoreply@blogger.com